September 1st. A lot of things happened on September 1st this year. Christophe and I celebrated another year of being married, my best friend Sherry got married, but on this September 1st a new life was brought into the world.
Our little cousin Brooklyn was born. She was 8 weeks early and has been in the NICU since she arrived. Richard and Morgan Waters are the parents of this sweet girl. She weighs 4 pounds even.
Her test results came back yesterday. Brooklyn is missing her 15th chromosome.
This is called prader-willi/angleman syndrome which causes mental retardation. The extent of mental retardation can be mild to severe and will only be known over time.
Keep this family in your thoughts as they digest what is happening and learn how to care for their new baby. In the mean time, if anyone has any preemie girls clothes they are willing to donate, please contact me.
Pray she gets to come home soon.
Prader-willi/angleman syndrome or not, she's a beautiful baby girl. And she is loved and will get plenty of love and support from her family. That's all that matters. I wish them the best of luck. Maybe we will get to meet her one day.
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